Living As A Fibromyalgia Sufferer | National Fibromyalgia Awareness Day

Guess what day it is today? It’s National Fibromyalgia Awareness Day and, my gosh, does this condition need to be given more awareness. I’ve officially been diagnosed with this for around 2 years now and it’s been a very tricky journey. From hearing that the pain I’d been suffering was because of a condition to being one of 2 million people in the UK who suffer from Fibromyalgia .

Life with it is far from easy!

If you’ve never heard of Fibromyalgia before, imagine having been to the gym for hours that causes you body to be sore paired along the flu and times though by 100! That is what it’s like living with this. Constant pain through every inch of your body every single minute of every single day. Some days you can ignore the pain and just carry on with normal things but then there are other days where it’s the worst pain imaginable.

No fun!

With it being the specific awareness day, I thought I’d give you a little taster of what it’s like to go through it.

What you don’t know is that Fibro isn’t just pain. It’s so much more than that and that is what makes it an awful condition to have. You get extreme tiredness, irritable bowel syndrome (IBS), being really sensitive to pain such as stubbing your toe and the pain lasting way longer than it’s meant to. Headaches, depression (pretty obvious if you’re in pain all the time) and sometimes restless leg syndrome.

Everyone suffers differently and that’s why GPs seem to constantly struggle to understand Fibromyaglia has an actual physical condition. You go through blood tests that show nothing so you constantly have to battle.

The most frustrating thing I’ve personally had to go through is convincing my GP that the pain isn’t all in my head. It seems that as soon as they hear you have mental health they don’t particularly take you seriously. I actually wish that my Fibro was all to do with my depression because talking it away would be amazing but unfortunately that isn’t how it works.

I’m on a bunch of medication to handle all the symptoms:

  • Gabapentin (usually used for nerve pain and it’s meant to help)
  • Baclofen (this is a musle relaxant because boy, do these muscles get way tense when the pain hits)
  • Lansoprazole (to lower all that nasty stomach acid that IBS gives me)
  • Sertraline (for depression)
  • Naproxen (deals with any inflammation so a bit stronger than Ibuprofen)

I swear I’m rattling with all these! To be honest, I wish I didn’t have to take them because they all come with different side effects and I do my best to try and exercise through walking to ease, but nope.

Have you ever heard the old saying that ‘pain is always worse at night’? Well, it’s true!

The daytime gives me plenty of distractions from what I’m feeling but as soon as the night comes, everything seems to hit. On my worst days, I am literally sobbing and almost writhing because I can’t get away from the pain. I do my best to try and relax my body as much as I can. I get into my comfiest PJs, light some of my favourite Yankee Candles (they smell so good!), have a bath and try to do anything to ignore.

Sometimes these work, sometimes they do nothing. It’s just one of those things.

In my eyes, Fibromyalgia is a disablity and, by making others aware of the difficulties sufferers face every day, I hope that the medical profession and others become aware of that. Right now there is no cure to it other than just handling the symptoms but I refuse to let it define me so here I am.

If you suffer with it, we’re in this together! Big love to the lovely ladies in my Fibro WhatsApp group!

Do you suffer from Fibromyalgia? If not, what are your thoughts about it?